Participants Wanted for European Dystonia Survey

By Dystonia Ireland | Nov 6, 2017

Dystonia Ireland would like to ask our members if they would like to participate in a European Dystonia Survey project by Prof. Maja Relja about time of diagnosis access to treatment and quality of life Click on where you find the survey. The survey will be up and running until the end of December…

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Mairead Kelliher-Enright,

A Huge Thank You to Mairead Kelliher-Enright

By Dystonia Ireland | May 26, 2017

A Huge Thank You to Mairead Kelliher-Enright, Lixnaw, Co. Kerry who selflessly raised an amazing  €7,320.50  to find a cure for dystonia. Mairead, who has had DBS surgery rallied her family and friends some months ago organised a 5K walk, obtained sponsorship and held a raffle in her home village of Lixnaw. Dystonia Ireland are…

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NAI launch report on Rare Neurological Conditions

By Dystonia Ireland | Mar 6, 2016

NAI have launched the report of their half day conference in January on Rare Neurological Conditions to coincide with International Rare Diseases day today. The conference on January 29th brought together the leads of both the rare disease and neurology clinical programmes together with other stakeholders to explore some of the challenges and potential solutions…

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