When a child is diagnosed with dystonia parents may not know where to turn, the process of diagnosis and coping with symptoms can be overwhelming.
There are resources available to help you
Seek out the best medical care for your child. Consider consulting with a paediatric neurologist who specialises in movement disorders for children.
Educate yourself about dystonia and treatment options.
Connect with other families in the dystonia community.
Consider checking out the Dystonia Medical Research Foundation group Support4Parents of Children with dystonia on Facebook