Posts by Dystonia Ireland

Thanks to everyone (35 organisations this year!) for your support of the upcoming Get Rare Aware campaign, launching next week. A few asks for you. We need patient voices for…

This year the VHI Womens Mini Marathon will take place on Bank Holiday Sunday 2nd June 2024. We would love to have you join us on the day for Dystonia Ireland and…

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.…

Thanks to Darcy O Sullivan and his friends for raising €3,100 for Dystonia Ireland at this event. Read more about the event at: https://m.independent.ie/regionals/kerry/tralee-news/photos-show-tralee-bar-and-hotel-staff-enjoying-charity-soccer-tournament-for-dystonia-ireland/a788354191.html — Darren (Darcy) O’Sullivan from Tralee…

++ Still time to register for this event++Tel: 003531 4922514 or E-mail: info@dystonia.ie to register. Dystonia Ireland International Conference: The Round Room at The Mansion House Dublin Saturday 3rd June…

This year the VHI Womens Mini Marathon will take place on Bank Holiday Sunday 5th June. We would love to have you join us on the day for Dystonia Ireland…