Welcome to Dystonia Ireland

The aims of Dystonia Ireland are to promote and encourage scientific research into the causes and treatments of dystonia, raise the level of awareness amongst the general public and the medical profession, offer support and information to all people with dystonia and their families nationwide. As the national support group for dystonia, we also represent the interests of our members with international support agencies and dystonia networks.

What is Dystonia?

Dystonia is a neurological movement disorder which may affect anyone at any age. It is characterised by involuntary muscle contractions which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords.

Latest News

Keep up to date with all that's happening at Dystonia Ireland.

Rare Disease Day

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.…
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Recovery Rising Cycle For Dystonia Ireland

Thanks to Catriona Nally for organising this fundraising event in aid of Dystonia Ireland. The Cycle takes place on August 27th, from Ballymun to Tiglin, Greystones. Find out more and…
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Charity Soccer Tournament in Aid of Dystonia Ireland On July 23rd 2023

Thanks to Darcy O Sullivan and his friends for raising €3,100 for Dystonia Ireland at this event. Read more about the event at: https://m.independent.ie/regionals/kerry/tralee-news/photos-show-tralee-bar-and-hotel-staff-enjoying-charity-soccer-tournament-for-dystonia-ireland/a788354191.html — Darren (Darcy) O’Sullivan from Tralee…
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Dystonia Ireland International Conference – 3rd June 2023

++ Still time to register for this event++Tel: 003531 4922514 or E-mail: info@dystonia.ie to register. Dystonia Ireland International Conference: The Round Room at The Mansion House Dublin Saturday 3rd June…
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Survey on alternative and complementary therapies

To patients with focal dystonias, As part of the Dystonia Research Group in Dublin, we are studying the use of alternative and complementary therapies. Although there is no evidence supporting…
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THE WESTIN DUBLIN HOTELSATURDAY 26th NOVEMBER 2022 We are delighted to inform you that our Conference will take place on Saturday, 26th November, 2022 in The Banking Hall, The Westin…
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