Welcome to Dystonia Ireland

The aims of Dystonia Ireland are to promote and encourage scientific research into the causes and treatments of dystonia, raise the level of awareness amongst the general public and the medical profession, offer support and information to all people with dystonia and their families nationwide. As the national support group for dystonia, we also represent the interests of our members with international support agencies and dystonia networks.

What is Dystonia?

Dystonia is a neurological movement disorder which may affect anyone at any age. It is characterised by involuntary muscle contractions which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords.

Latest News

Keep up to date with all that's happening at Dystonia Ireland.

CONGRATULATIONS to our Mini Marathon Ladies!

Bernie Drumgoole, Marie Drumgoole, Caitriona Williams, Clodagh Mooney Duggan, Lauren Flanagan We would like to say a huge Congratulations and Thank You to all the ladies who took part in…
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Get Rare Aware campaign

Thanks to everyone (35 organisations this year!) for your support of the upcoming Get Rare Aware campaign, launching next week. A few asks for you. We need patient voices for…
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Mini Marathon poster

VHI Womens’ Mini Marathon 2024

This year the VHI Womens Mini Marathon will take place on Bank Holiday Sunday 2nd June 2024. We would love to have you join us on the day for Dystonia Ireland and…
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Rare Disease Day

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.…
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Recovery Rising Cycle For Dystonia Ireland

Thanks to Catriona Nally for organising this fundraising event in aid of Dystonia Ireland. The Cycle takes place on August 27th, from Ballymun to Tiglin, Greystones. Find out more and…
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Charity Soccer Tournament in Aid of Dystonia Ireland On July 23rd 2023

Thanks to Darcy O Sullivan and his friends for raising €3,100 for Dystonia Ireland at this event. Read more about the event at: https://m.independent.ie/regionals/kerry/tralee-news/photos-show-tralee-bar-and-hotel-staff-enjoying-charity-soccer-tournament-for-dystonia-ireland/a788354191.html — Darren (Darcy) O’Sullivan from Tralee…
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