Latest News
Join Us for The VHI WOMEN’S MINI MARATHON 2025 & Post Race Get-Together
Hope you are all keeping well! The VHI Women’s Mini Marathon is taking place on Bank Holiday Sunday, 1st June 2025, with the event starting at 12:30pm sharp. To show our appreciation,…
Read MoreReminder: World Voice Day Zoom Meeting
Dystonia Ireland and Dysphonia International are delighted to host their first joint Zoom meeting in celebration of World Voice Day. Date: Thursday, April 10th Time: 8:00 PM GMT This event, featuring…
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The Dystonia UK Awards – Nominations
Who is your Super Star or Masked Hero? Dystonia Ireland are pleased to announce that they have been invited for the first time to take part in the following two…
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Empowering Connections Social Event
EMPOWERING CONNECTIONS SOCIAL EVENT.27TH March 6pm to 8.30 AT Trinity Comprehensive Secondary School, Ballymun (main hall) You are Strong You are Powerful You are Determined Despite any obstacles that you may have You CHOOSE to…
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Cervical Dystonia research at UCD
A research team in UCD is currently conducting a study on how language is affected in people with cervical dystonia (CD) and would like to invite you to participate in…
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My Neuro Survey: Patient Experience Survey
Share Your Experiences of Living with Dystonia The Neurological Alliance of Ireland has partnered with the Neurological Alliance of England and the other alliances in the UK to produce three…
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Samuel Belzberg 6th International Dystonia Symposium
Summary for the Dystonia Community DMRF is thrilled to share this highly anticipated lay summary of the Samuel Belzberg 6th International Dystonia Symposium (IDS6), held in Dublin, Ireland last year.…
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CONGRATULATIONS to our Mini Marathon Ladies!
Bernie Drumgoole, Marie Drumgoole, Caitriona Williams, Clodagh Mooney Duggan, Lauren Flanagan We would like to say a huge Congratulations and Thank You to all the ladies who took part in…
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Get Rare Aware campaign
Thanks to everyone (35 organisations this year!) for your support of the upcoming Get Rare Aware campaign, launching next week. A few asks for you. We need patient voices for…
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