Latest News
CONGRATULATIONS to our Mini Marathon Ladies!
Bernie Drumgoole, Marie Drumgoole, Caitriona Williams, Clodagh Mooney Duggan, Lauren Flanagan We would like to say a huge Congratulations and Thank You to all the ladies who took part in…
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Get Rare Aware campaign
Thanks to everyone (35 organisations this year!) for your support of the upcoming Get Rare Aware campaign, launching next week. A few asks for you. We need patient voices for…
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VHI Womens’ Mini Marathon 2024
This year the VHI Womens Mini Marathon will take place on Bank Holiday Sunday 2nd June 2024. We would love to have you join us on the day for Dystonia Ireland and…
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Rare Disease Day
Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.…
Read MoreRecovery Rising Cycle For Dystonia Ireland
Thanks to Catriona Nally for organising this fundraising event in aid of Dystonia Ireland. The Cycle takes place on August 27th, from Ballymun to Tiglin, Greystones. Find out more and…
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Charity Soccer Tournament in Aid of Dystonia Ireland On July 23rd 2023
Thanks to Darcy O Sullivan and his friends for raising €3,100 for Dystonia Ireland at this event. Read more about the event at: https://m.independent.ie/regionals/kerry/tralee-news/photos-show-tralee-bar-and-hotel-staff-enjoying-charity-soccer-tournament-for-dystonia-ireland/a788354191.html — Darren (Darcy) O’Sullivan from Tralee…
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Dystonia Ireland International Conference – 3rd June 2023
++ Still time to register for this event++Tel: 003531 4922514 or E-mail: info@dystonia.ie to register. Dystonia Ireland International Conference: The Round Room at The Mansion House Dublin Saturday 3rd June…
Read MoreSurvey on alternative and complementary therapies
To patients with focal dystonias, As part of the Dystonia Research Group in Dublin, we are studying the use of alternative and complementary therapies. Although there is no evidence supporting…
Read MoreDYSTONIA IRELAND – “ASK THE EXPERTS” CONFERENCE
THE WESTIN DUBLIN HOTELSATURDAY 26th NOVEMBER 2022 We are delighted to inform you that our Conference will take place on Saturday, 26th November, 2022 in The Banking Hall, The Westin…
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