Latest News

Get Rare Aware campaign

By Dystonia Ireland | Apr 15, 2024

Thanks to everyone (35 organisations this year!) for your support of the upcoming Get Rare Aware campaign, launching next week. A few asks for you. We need patient voices for…

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Mini Marathon poster

VHI Womens’ Mini Marathon 2024

By Dystonia Ireland | Apr 15, 2024

This year the VHI Womens Mini Marathon will take place on Bank Holiday Sunday 2nd June 2024. We would love to have you join us on the day for Dystonia Ireland and…

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Rare Disease Day

By Dystonia Ireland | Feb 29, 2024

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.…

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Recovery Rising Cycle For Dystonia Ireland

By Dystonia Ireland | Aug 10, 2023

Thanks to Catriona Nally for organising this fundraising event in aid of Dystonia Ireland. The Cycle takes place on August 27th, from Ballymun to Tiglin, Greystones. Find out more and…

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Charity Soccer Tournament in Aid of Dystonia Ireland On July 23rd 2023

By Dystonia Ireland | Jul 11, 2023

Thanks to Darcy O Sullivan and his friends for raising €3,100 for Dystonia Ireland at this event. Read more about the event at: — Darren (Darcy) O’Sullivan from Tralee…

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Dystonia Ireland International Conference – 3rd June 2023

By Dystonia Ireland | May 15, 2023

++ Still time to register for this event++Tel: 003531 4922514 or E-mail: to register. Dystonia Ireland International Conference: The Round Room at The Mansion House Dublin Saturday 3rd June…

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Survey on alternative and complementary therapies

By Dystonia Ireland | Jan 20, 2023

To patients with focal dystonias, As part of the Dystonia Research Group in Dublin, we are studying the use of alternative and complementary therapies. Although there is no evidence supporting…

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By Dystonia Ireland | Nov 1, 2022

THE WESTIN DUBLIN HOTELSATURDAY 26th NOVEMBER 2022 We are delighted to inform you that our Conference will take place on Saturday, 26th November, 2022 in The Banking Hall, The Westin…

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The Empowering Abilities book launch

By Dystonia Ireland | May 6, 2022

Due to take place on the 12th of May The Empowering Abilities book launch promises to be a celebration of massive achievement for 14 authors the majority of whom have…

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