Get Rare Aware campaign

Thanks to everyone (35 organisations this year!) for your support of the upcoming Get Rare Aware campaign, launching next week. A few asks for you. We need patient voices for…

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Rare Disease Day

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.…

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Charity Soccer Tournament in Aid of Dystonia Ireland On July 23rd 2023

Thanks to Darcy O Sullivan and his friends for raising €3,100 for Dystonia Ireland at this event. Read more about the event at: https://m.independent.ie/regionals/kerry/tralee-news/photos-show-tralee-bar-and-hotel-staff-enjoying-charity-soccer-tournament-for-dystonia-ireland/a788354191.html — Darren (Darcy) O’Sullivan from Tralee…

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