Get Rare Aware campaign

Thanks to everyone (35 organisations this year!) for your support of the upcoming Get Rare Aware campaign, launching next week.

A few asks for you.

We need patient voices for the 6x webinars – with priority for next Thursday and the following Tuesday – can you please ask your communities if they can contribute. Ideally we need speakers from each region.
HSE Dublin and Midlands Thur, 18th Apr, 12.30pm
HSE Dublin and South East Tue, 23rd April,12.30pm
HSE West & North West Wed, 22nd May, 12.30pm
HSE Dublin & North East Thur, 30th May, 12.30pm
HSE South West Wed, 12th June, 12.30pm
HSE Mid West Wed, 19th June, 12.30pm

The photoshoot for the launch is Wed 17th Apr @11.30 outside the Dail (Kildare St). Would love to have you join for it – the more the merrier. And if you have anyone from around the country, even better. Will try to get TDs along so maybe soem shots with local TDs. If you can attend please fill in your details by Wednesday at 10am so we can organise photos.
Please share the link for the first webinar – Thursday Apr 18 at 12.30 – webinars are being run by health region but everyone is of course welcome to attend. Graphic attached. Registration link:
The Get Rare Aware website is live – – and additional campaign graphics for the 3 main messages are attached.