Dystonia Ireland was founded in 1998 by patient Maria Hickey along with Medical Consultant Prof. Michael Hutchison, Consultant Neurologist at St. Vincents and Tallaght Hospitals.
The aims of Dystonia Ireland are:
- To encourage and promote the best methods of care, education and treatment of persons suffering from Dystonia.
- To increase awareness of Dystonia through information and publicity within the medical profession and among the general public, and to help gain a correct diagnosis of their condition.
- To offer welfare support and to help patients suffering from Dystonia and their families and carers come to terms with and manage their condition, and to obtain appropriate treatment wherever possible.
- To fund and research into Dystonia, to find out the causes of this distressing and sometimes disabling condition and to hopefully find a cure for it.
- To recruit, instruct, and train personnel necessary to provide services for persons suffering from Dystonia and to establish scholarships, grants, awards, and prizes tenable at any University College or Institution of Higher Learning to approved persons preparing for or engaged in works (whether research work or otherwise) relating to Dystonia, its causes, effect, prevention, treatment and cure.
- To provide literature to disseminate knowledge of Dystonia and of all assistance available through the Social Services.
- To initiate and foster the formation of local Support Groups in Ireland, to provide assistance and help of every description to families, relatives and friends of persons suffering with Dystonia.
Dystonia Ireland is a member of the Neurological Alliance of Ireland and Dystonia Europe. It is a registered charity and a limited company. Current membership is over 700 and growing.
Dystonia Ireland is grateful for the close affiliation and support it has shared with the Dystonia Medical Research Foundation over the years to help increase awareness of dystonia in Ireland.
Prof Michael Hutchinson, BSc, MB, FRCP, FRCPI,
Prof Tim Lynch, MRCPI, MRCP (London),
Prof Mary King, FRCPI, FRCPCH,
Consultant Paediatric Neurologist
Mr Brian Kerr,
Football Association of Ireland