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Welcome to Dystonia Ireland

The aims of Dystonia Ireland are to promote and encourage scientific research into the causes and treatments of dystonia, raise the level of awareness amongst the general public and the medical profession, offer support and information to all people with dystonia and their families nationwide. As the national support group for dystonia, we also represent the interests of our members with international support agencies and dystonia networks.

What is Dystonia?

Dystonia is a neurological movement disorder which may affect anyone at any age. It is characterised by involuntary muscle contractions which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords.

Latest News

Keep up to date with all that's happening at Dystonia Ireland.

Empowering Connections – 21st November 2025

Next Empowering Connections Event:Friday, 21st NovemberMeakstown Community CentreTickets only €10 “My name is Tracey Hogan (née McCann) — I’m the CEO of Empowering Abilities and the founder of Empowering Connections,…
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Marie-Claire de Sachy fundraising for Dystonia Ireland in Irish Life Dublin Marathon 2025

Many Thanks to Marie-Claire de Sachy, running in Irish Life Dublin Marathon 2025 on 26th October 2025, to raise funds for Dystonia Ireland Medical Research Project.  Marie-Claire can be supported…
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Empowering Connections 19 September 2025 

Empowering Connections “I’m Tracey Mc Cann, founder of Empowering Abilities and creator of Empowering Connections. I’d love to personally invite you and your members to join us for a very special gathering —…
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2nd Joint Virtual Meeting of Dysphonia International & Dystonia Ireland Meeting

You’re Invited: 2nd Joint Virtual Meeting of Dysphonia International & Dystonia Ireland Meeting on 7.24.25 Please join Dysphonia International & Dystonia Ireland for a virtual meeting on Thursday, July 24,…
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Language and Cervical Dystonia Study

Call for Participants A research team in UCD is currently conducting a study on how language is affected in people with cervical dystonia (CD) and would like to invite you…
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Thank You – Women’s Mini Marathon  2025

Thank you  to the Remarkable Women Who Represented Dystonia Ireland  in the Women’s Mini Marathon – Sunday, 1st June 2025 A huge thank you to the incredible women who laced up their…
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