Welcome to Dystonia Ireland

The aims of Dystonia Ireland are to promote and encourage scientific research into the causes and treatments of dystonia, raise the level of awareness amongst the general public and the medical profession, offer support and information to all people with dystonia and their families nationwide. As the national support group for dystonia, we also represent the interests of our members with international support agencies and dystonia networks.

What is Dystonia?

Dystonia is a neurological movement disorder which may affect anyone at any age. It is characterised by involuntary muscle contractions which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords.

Latest News

Keep up to date with all that's happening at Dystonia Ireland.

Women’s Mini Marathon

Countdown is on for Women’s Mini Marathon

Emma Quinn and Sarah McEvoy who took part in the Women’s Mini Marathon last year   Please join Dystonia Ireland team …..for a fun day out! Entry Forms are now in The Evening Herald every Wednesday and Saturday or online www.vhiwomensminimarathon.ie Closing date 28th April 2017 or when maximum numbers of entries are reached. Please…

Join Dystonia Ireland at the vhi Womens Mini Marathon

Please join Dystonia Ireland at the VHI Women’s Marathon on Monday 5th June 2017. Every year our friends take part in the VHI Women’s Mini Marathon to raise much needed funds for Dystonia Ireland. Please get in touch if you would like to take part and join us on the day. We will provide free t-shirts,…

Dystonia Conference Meet the Experts – An Information Meeting Guest Speakers from Europe and Ireland

Dystonia Ireland 2016 Conference

Dystonia Conference Meet the Experts – An Information Meeting Guest Speakers from Europe and Ireland Thank you to members, friends, speakers, and doctors who made our Meet The Experts Conference in Dublin such a success.

NAI launch report on Rare Neurological Conditions

NAI have launched the report of their half day conference in January on Rare Neurological Conditions to coincide with International Rare Diseases day today. The conference on January 29th brought together the leads of both the rare disease and neurology clinical programmes together with other stakeholders to explore some of the challenges and potential solutions…

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