Welcome to Dystonia Ireland

The aims of Dystonia Ireland are to promote and encourage scientific research into the causes and treatments of dystonia, raise the level of awareness amongst the general public and the medical profession, offer support and information to all people with dystonia and their families nationwide. As the national support group for dystonia, we also represent the interests of our members with international support agencies and dystonia networks.

What is Dystonia?

Dystonia is a neurological movement disorder which may affect anyone at any age. It is characterised by involuntary muscle contractions which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords.

Latest News

Keep up to date with all that's happening at Dystonia Ireland.

Cervical dystonia survey

Dystonia Ireland needs your help! Helen Gowling, Trainee Clinical Psychologist, Lancaster University, has received final approval from the Ethics Committee for her research thesis and her survey about stigma, coping styles and well- being in individuals with Cervical Dystonia The study will be supervised by Dr Fiona Eccles at Lancaster University and Dr Fiadhnait O’Keeffe…

VHI Women’s Mini Marathon Thank You

Congratulations and Thank you to the Ladies from Dublin, Dundalk and Navan who took part in The VHI Women’s Mini Marathon for Dystonia Ireland. Many thanks also to our Great Supporters!

Brass and woodwind musicians needed for Musician’s Dystonia research:

Brass and woodwind musicians needed for Musician’s Dystonia research: We are a research group at Trinity College Dublin (TCD) developing a tool (i.e. computer program) for objectively and quantitatively assess Embouchure Dystonia, an expression of Musician’s Dystonia (the most common movement disorder affecting musicians). For this purpose, we are seeking to recruit wind musicians (both…

Join Dystonia Ireland at the vhi Womens Mini Marathon

Please join Dystonia Ireland at the VHI Women’s Marathon on SUNDAY 2nd June 2019. Every year our friends take part in the VHI Women’s Mini Marathon to raise much needed funds for Dystonia Ireland. Please get in touch if you would like to take part and join us on the day. We will provide free…

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