A Huge Thank You to Mairead Kelliher-Enright, Lixnaw, Co. Kerry who selflessly raised an amazing  €7,320.50  to find a cure for dystonia. Mairead, who has had DBS surgery rallied her family and friends some months ago organised a 5K walk, obtained sponsorship and held a raffle in her home village of Lixnaw. Dystonia Ireland are…

Emma Quinn and Sarah McEvoy who took part in the Women’s Mini Marathon last year   Please join Dystonia Ireland team …..for a fun day out! Entry Forms are now in The Evening Herald every Wednesday and Saturday or online www.vhiwomensminimarathon.ie Closing date 28th April 2017 or when maximum numbers of entries are reached. Please…

Please join Dystonia Ireland at the VHI Women’s Marathon on Monday 5th June 2017. Every year our friends take part in the VHI Women’s Mini Marathon to raise much needed funds for Dystonia Ireland. Please get in touch if you would like to take part and join us on the day. We will provide free t-shirts,…

Dystonia Conference Meet the Experts – An Information Meeting Guest Speakers from Europe and Ireland Thank you to members, friends, speakers, and doctors who made our Meet The Experts Conference in Dublin such a success.

NAI have launched the report of their half day conference in January on Rare Neurological Conditions to coincide with International Rare Diseases day today. The conference on January 29th brought together the leads of both the rare disease and neurology clinical programmes together with other stakeholders to explore some of the challenges and potential solutions…