Latest News
Join Dystonia Ireland at the vhi Womens Mini Marathon
Please join Dystonia Ireland at the VHI Women’s Marathon on SUNDAY 2nd June 2019. Every year our friends take part in the VHI Women’s Mini Marathon to raise much needed funds for Dystonia Ireland. Please get in touch if you would like to take part and join us on the day. We will provide free…
Read MoreDystonia Conference Athlone 2018
DYSTONIA CONFERENCE – “MEET THE EXPERTS” – Patient Information Meeting RADISSON BLU HOTEL – ATHLONE, Northgate Street, Athlone, Co. Westmeath (5 minute walk from Athlone Bus and Train Station www.radissonblu.com SATURDAY 8th September 2018 We are delighted to inform you that our Conference will take place on Saturday, 8th September, 2018 in the Radisson Blu…
Read More
Motivation > Limitation
Motivation > Limitation by Tracey Ellen Maria Sat, June 30, 2018 2:00 PM – 5:30 PM Crowne Plaza Dublin Airport Tracey will be using her assistive communication technology to guide you to the realisation that nothing is impossible. ‘Be the person that you deserve to be, the best version of yourself. We…
Read MoreDystonia Conferences 2018 – Dates for your Diary
Dates for your Diary Dystonia Conferences – Meet The Experts Saturday 9th June 2018 – Imperial Hotel, Cork City Saturday 8th September – The Radisson Blu Hotel, Athlone Saturday 27th October – Westbury Hotel, Dublin. Registration Form with full details will be sent out to you all soon.
Read MoreParticipants wanted for Irish Dystonia Research
Participants Needed for Cervical Dystonia Research: – Aged between 45 and 65 years? – Willing to contribute to research in cervical dystonia? Participants (both individuals with cervical dystonia, and controls with no known neurological condition) are being sought for research into eye movements and visual perception as a means of gaining insight into…
Read More
Participants Wanted for European Dystonia Survey
Dystonia Ireland would like to ask our members if they would like to participate in a European Dystonia Survey project by Prof. Maja Relja about time of diagnosis access to treatment and quality of life Click on https://surveys.dystonia-europe.org where you find the survey. The survey will be up and running until the end of December…
Read More
A Huge Thank You to Mairead Kelliher-Enright
A Huge Thank You to Mairead Kelliher-Enright, Lixnaw, Co. Kerry who selflessly raised an amazing €7,320.50 to find a cure for dystonia. Mairead, who has had DBS surgery rallied her family and friends some months ago organised a 5K walk, obtained sponsorship and held a raffle in her home village of Lixnaw. Dystonia Ireland are…
Read More
NAI launch report on Rare Neurological Conditions
NAI have launched the report of their half day conference in January on Rare Neurological Conditions to coincide with International Rare Diseases day today. The conference on January 29th brought together the leads of both the rare disease and neurology clinical programmes together with other stakeholders to explore some of the challenges and potential solutions…
Read More