Latest News

Latest News

Dystonia Conference Athlone 2018

By Dystonia Ireland | Aug 15, 2018

DYSTONIA CONFERENCE – “MEET THE EXPERTS” – Patient Information Meeting RADISSON BLU HOTEL – ATHLONE, Northgate Street, Athlone, Co. Westmeath (5 minute walk from Athlone Bus and Train Station SATURDAY 8th September 2018 We are delighted to inform you that our Conference will take place on Saturday, 8th September, 2018 in the Radisson Blu…

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Motivation > Limitation

By Dystonia Ireland | Jun 12, 2018

Motivation > Limitation by Tracey Ellen Maria   Sat, June 30, 2018 2:00 PM – 5:30 PM Crowne Plaza Dublin Airport   Tracey will be using her assistive communication technology to guide you to the realisation that nothing is impossible.   ‘Be the person that you deserve to be, the best version of yourself. We…

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Dystonia Conferences 2018 – Dates for your Diary

By Dystonia Ireland | Apr 30, 2018

Dates for your Diary Dystonia Conferences – Meet The Experts Saturday 9th June 2018 – Imperial Hotel, Cork City Saturday  8th September – The Radisson Blu  Hotel, Athlone Saturday 27th  October – Westbury Hotel, Dublin. Registration Form with full details will be sent out to you all soon.

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Participants wanted for Irish Dystonia Research

By Dystonia Ireland | Nov 7, 2017

Participants Needed for Cervical Dystonia Research:   – Aged between 45 and 65 years? – Willing to contribute to research in cervical dystonia?   Participants (both individuals with cervical dystonia, and controls with no known neurological condition) are being sought for research into eye movements and visual perception as a means of gaining insight into…

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Participants Wanted for European Dystonia Survey

By Dystonia Ireland | Nov 6, 2017

Dystonia Ireland would like to ask our members if they would like to participate in a European Dystonia Survey project by Prof. Maja Relja about time of diagnosis access to treatment and quality of life Click on where you find the survey. The survey will be up and running until the end of December…

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Mairead Kelliher-Enright,

A Huge Thank You to Mairead Kelliher-Enright

By Dystonia Ireland | May 26, 2017

A Huge Thank You to Mairead Kelliher-Enright, Lixnaw, Co. Kerry who selflessly raised an amazing  €7,320.50  to find a cure for dystonia. Mairead, who has had DBS surgery rallied her family and friends some months ago organised a 5K walk, obtained sponsorship and held a raffle in her home village of Lixnaw. Dystonia Ireland are…

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NAI launch report on Rare Neurological Conditions

By Dystonia Ireland | Mar 6, 2016

NAI have launched the report of their half day conference in January on Rare Neurological Conditions to coincide with International Rare Diseases day today. The conference on January 29th brought together the leads of both the rare disease and neurology clinical programmes together with other stakeholders to explore some of the challenges and potential solutions…

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