DYSTONIA CONFERENCE – “MEET THE EXPERTS” – Patient Information Meeting RADISSON BLU HOTEL – ATHLONE, Northgate Street, Athlone, Co. Westmeath (5 minute walk from Athlone Bus and Train Station www.radissonblu.com SATURDAY 8th September 2018 We are delighted to inform you that our Conference will take place on Saturday, 8th September, 2018 in the Radisson Blu…

Motivation > Limitation by Tracey Ellen Maria   Sat, June 30, 2018 2:00 PM – 5:30 PM Crowne Plaza Dublin Airport   Tracey will be using her assistive communication technology to guide you to the realisation that nothing is impossible.   ‘Be the person that you deserve to be, the best version of yourself. We…

Dates for your Diary Dystonia Conferences – Meet The Experts Saturday 9th June 2018 – Imperial Hotel, Cork City Saturday  8th September – The Radisson Blu  Hotel, Athlone Saturday 27th  October – Westbury Hotel, Dublin. Registration Form with full details will be sent out to you all soon.

Participants Needed for Cervical Dystonia Research:   – Aged between 45 and 65 years? – Willing to contribute to research in cervical dystonia?   Participants (both individuals with cervical dystonia, and controls with no known neurological condition) are being sought for research into eye movements and visual perception as a means of gaining insight into…

Dystonia Ireland would like to ask our members if they would like to participate in a European Dystonia Survey project by Prof. Maja Relja about time of diagnosis access to treatment and quality of life Click on https://surveys.dystonia-europe.org where you find the survey. The survey will be up and running until the end of December…

A Huge Thank You to Mairead Kelliher-Enright, Lixnaw, Co. Kerry who selflessly raised an amazing  €7,320.50  to find a cure for dystonia. Mairead, who has had DBS surgery rallied her family and friends some months ago organised a 5K walk, obtained sponsorship and held a raffle in her home village of Lixnaw. Dystonia Ireland are…

NAI have launched the report of their half day conference in January on Rare Neurological Conditions to coincide with International Rare Diseases day today. The conference on January 29th brought together the leads of both the rare disease and neurology clinical programmes together with other stakeholders to explore some of the challenges and potential solutions…