Latest News

Latest News

Participants wanted for Irish Dystonia Research

By Dystonia Ireland | Nov 7, 2017

Participants Needed for Cervical Dystonia Research:   – Aged between 45 and 65 years? – Willing to contribute to research in cervical dystonia?   Participants (both individuals with cervical dystonia, and controls with no known neurological condition) are being sought for research into eye movements and visual perception as a means of gaining insight into…

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Participants Wanted for European Dystonia Survey

By Dystonia Ireland | Nov 6, 2017

Dystonia Ireland would like to ask our members if they would like to participate in a European Dystonia Survey project by Prof. Maja Relja about time of diagnosis access to treatment and quality of life Click on https://surveys.dystonia-europe.org where you find the survey. The survey will be up and running until the end of December…

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Dystonia Ireland Conference

By Dystonia Ireland | Nov 1, 2017

DYSTONIA IRELAND CONFERENCE – “Living and Coping with Dystonia”   THE WESTBURY HOTEL DUBLIN SATURDAY 25th November 2017   We are delighted to inform you that our Conference will take place on Saturday, 25th November, 2017 in The Westbury Hotel, Balfe Street, Dublin 2. (just off Grafton Street a city centre location with registration taking…

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Mark Walsh to undertake Charity Cycle for Dystonia

By Dystonia Ireland | Nov 1, 2017

Mark Walsh is to undertake Charity Coast to Coast Cycle in Costa Rica for Dystonia 3-12 November 2017. Mark on behalf of Dystonia Ireland we would like to wish you the very best of luck as you undertake this very difficult challenge! Please Sponsor Mark on https://give.everydayhero.com/ie/dystoniaireland

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Mairead Kelliher-Enright,

A Huge Thank You to Mairead Kelliher-Enright

By Dystonia Ireland | May 26, 2017

A Huge Thank You to Mairead Kelliher-Enright, Lixnaw, Co. Kerry who selflessly raised an amazing  €7,320.50  to find a cure for dystonia. Mairead, who has had DBS surgery rallied her family and friends some months ago organised a 5K walk, obtained sponsorship and held a raffle in her home village of Lixnaw. Dystonia Ireland are…

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Women’s Mini Marathon

Countdown is on for Women’s Mini Marathon

By Dystonia Ireland | Apr 7, 2017

Emma Quinn and Sarah McEvoy who took part in the Women’s Mini Marathon last year   Please join Dystonia Ireland team …..for a fun day out! Entry Forms are now in The Evening Herald every Wednesday and Saturday or online www.vhiwomensminimarathon.ie Closing date 28th April 2017 or when maximum numbers of entries are reached. Please…

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Join Dystonia Ireland at the vhi Womens Mini Marathon

By Dystonia Ireland | Oct 17, 2016

Please join Dystonia Ireland at the VHI Women’s Marathon on Monday 5th June 2017. Every year our friends take part in the VHI Women’s Mini Marathon to raise much needed funds for Dystonia Ireland. Please get in touch if you would like to take part and join us on the day. We will provide free t-shirts,…

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Dystonia Conference Meet the Experts – An Information Meeting Guest Speakers from Europe and Ireland

Dystonia Ireland 2016 Conference

By Dystonia Ireland | Mar 13, 2016

Dystonia Conference Meet the Experts – An Information Meeting Guest Speakers from Europe and Ireland Thank you to members, friends, speakers, and doctors who made our Meet The Experts Conference in Dublin such a success.

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NAI launch report on Rare Neurological Conditions

By Dystonia Ireland | Mar 6, 2016

NAI have launched the report of their half day conference in January on Rare Neurological Conditions to coincide with International Rare Diseases day today. The conference on January 29th brought together the leads of both the rare disease and neurology clinical programmes together with other stakeholders to explore some of the challenges and potential solutions…

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