What is Dystonia?
Dystonia is a neurological movement disorder which may affect anyone at any age. It is characterised by involuntary muscle contractions which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords.
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Dystonia Ireland would like to ask our members if they would like to participate in a European Dystonia Survey project by Prof. Maja Relja about time of diagnosis access to treatment and quality of life Click on https://surveys.dystonia-europe.org where you find the survey. The survey will be up and running until the end of December…
DYSTONIA IRELAND CONFERENCE – “Living and Coping with Dystonia” THE WESTBURY HOTEL DUBLIN SATURDAY 25th November 2017 We are delighted to inform you that our Conference will take place on Saturday, 25th November, 2017 in The Westbury Hotel, Balfe Street, Dublin 2. (just off Grafton Street a city centre location with registration taking…
Mark Walsh is to undertake Charity Coast to Coast Cycle in Costa Rica for Dystonia 3-12 November 2017. Mark on behalf of Dystonia Ireland we would like to wish you the very best of luck as you undertake this very difficult challenge! Please Sponsor Mark on https://give.everydayhero.com/ie/dystoniaireland
A Huge Thank You to Mairead Kelliher-Enright, Lixnaw, Co. Kerry who selflessly raised an amazing €7,320.50 to find a cure for dystonia. Mairead, who has had DBS surgery rallied her family and friends some months ago organised a 5K walk, obtained sponsorship and held a raffle in her home village of Lixnaw. Dystonia Ireland are…
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