Welcome to Dystonia Ireland

The aims of Dystonia Ireland are to promote and encourage scientific research into the causes and treatments of dystonia, raise the level of awareness amongst the general public and the medical profession, offer support and information to all people with dystonia and their families nationwide. As the national support group for dystonia, we also represent the interests of our members with international support agencies and dystonia networks.

What is Dystonia?

Dystonia is a neurological movement disorder which may affect anyone at any age. It is characterised by involuntary muscle contractions which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords.

Latest News

Keep up to date with all that's happening at Dystonia Ireland.

Participants Wanted for European Dystonia Survey

Dystonia Ireland would like to ask our members if they would like to participate in a European Dystonia Survey project by Prof. Maja Relja about time of diagnosis access to treatment and quality of life Click on https://surveys.dystonia-europe.org where you find the survey. The survey will be up and running until the end of December…

Dystonia Ireland Conference

DYSTONIA IRELAND CONFERENCE – “Living and Coping with Dystonia”   THE WESTBURY HOTEL DUBLIN SATURDAY 25th November 2017   We are delighted to inform you that our Conference will take place on Saturday, 25th November, 2017 in The Westbury Hotel, Balfe Street, Dublin 2. (just off Grafton Street a city centre location with registration taking…

Mark Walsh to undertake Charity Cycle for Dystonia

Mark Walsh is to undertake Charity Coast to Coast Cycle in Costa Rica for Dystonia 3-12 November 2017. Mark on behalf of Dystonia Ireland we would like to wish you the very best of luck as you undertake this very difficult challenge! Please Sponsor Mark on https://give.everydayhero.com/ie/dystoniaireland

Mairead Kelliher-Enright,

A Huge Thank You to Mairead Kelliher-Enright

A Huge Thank You to Mairead Kelliher-Enright, Lixnaw, Co. Kerry who selflessly raised an amazing  €7,320.50  to find a cure for dystonia. Mairead, who has had DBS surgery rallied her family and friends some months ago organised a 5K walk, obtained sponsorship and held a raffle in her home village of Lixnaw. Dystonia Ireland are…

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