Welcome to Dystonia Ireland

The aims of Dystonia Ireland are to promote and encourage scientific research into the causes and treatments of dystonia, raise the level of awareness amongst the general public and the medical profession, offer support and information to all people with dystonia and their families nationwide. As the national support group for dystonia, we also represent the interests of our members with international support agencies and dystonia networks.

What is Dystonia?

Dystonia is a neurological movement disorder which may affect anyone at any age. It is characterised by involuntary muscle contractions which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords.

Latest News

Keep up to date with all that's happening at Dystonia Ireland.

Participants wanted for Irish Dystonia Research

Participants Needed for Cervical Dystonia Research:   – Aged between 45 and 65 years? – Willing to contribute to research in cervical dystonia?   Participants (both individuals with cervical dystonia, and controls with no known neurological condition) are being sought for research into eye movements and visual perception as a means of gaining insight into…

Participants Wanted for European Dystonia Survey

Dystonia Ireland would like to ask our members if they would like to participate in a European Dystonia Survey project by Prof. Maja Relja about time of diagnosis access to treatment and quality of life Click on https://surveys.dystonia-europe.org where you find the survey. The survey will be up and running until the end of December…

Mairead Kelliher-Enright,

A Huge Thank You to Mairead Kelliher-Enright

A Huge Thank You to Mairead Kelliher-Enright, Lixnaw, Co. Kerry who selflessly raised an amazing  €7,320.50  to find a cure for dystonia. Mairead, who has had DBS surgery rallied her family and friends some months ago organised a 5K walk, obtained sponsorship and held a raffle in her home village of Lixnaw. Dystonia Ireland are…

NAI launch report on Rare Neurological Conditions

NAI have launched the report of their half day conference in January on Rare Neurological Conditions to coincide with International Rare Diseases day today. The conference on January 29th brought together the leads of both the rare disease and neurology clinical programmes together with other stakeholders to explore some of the challenges and potential solutions…

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